Born July 7, 2010 at 2:01pm

"A baby will make love stronger, days shorter, nights longer, bankroll smaller, home happier,
clothes shabbier, the past easier, and the future worth living for."

Wednesday, September 1, 2010

Goodbye T-dot and Hello O-town!!!

We received some wonderful news today that Anna will have her eye exam tonight around 6pm and they will transfer her around midnight to Oshawa!

We will go visit her around 9pm tonight and then follow her over to Oshawa just to see her get settled in. I really hope this is it and they're not toying with us so let's keep our fingies crossed that she makes the big trek tonight!

In the meantime, Anna is gaining nicely, she is now up to 1904 grams from last night! Go Anna baby!!!

Marta & Arthur

Tuesday, August 31, 2010

Passed the 4 Pound Mark!!

Anna is now a huuuge 4 pounds and 1 ounces (1850 grams)!!! She ballooned a whopping 53 grams overnight and she is doing so well with her weight gain, I can see her hitting the 5 pound mark fairly soon in the future.

We tried mouth feeding her today. I won't get into details for the sheer reason that I might work myself up again. But after trying the bottle and the breast (she wasn't interested more in one or the other because she was so tired) we were basically told it's breastfeeding only, or if we want to bottle feed we would have to wait until she is 37 weeks gestation. Which makes absolutely NO sense at all; why would she know how to suck swallow and breathe at the breast and not at the bottle? She either has this reflex or she doesn't, no matter what she is drinking from. In any case, we will stand our ground with the bottle feeding for our own reasons and hopefully my nerves can last these next few weeks. It has been such a struggle with these nurses and lactation consultants. They really know how to kick a NICU mother down while on the ground instead of being supportive and encouraging.

In any case, Anna is still being tube fed 24mls of breast milk every 2 hours and has been tolerating her feeds very well. They are still fortified but the fortification will be taken away sometime once we go to the Level II hospital to see how she is doing with weight gain on her own. If she doesn't gain enough during that time off, then they will give us some fortifier to continue her for after she comes home. That is also pretty routine, a lot of babies take formula fortifier along with iron fortifiers after birth.

She also has a new pillow, the butterfly pillow I mentioned in an earlier post. It is to help her head get back to a round shape. Right now it is quite extended because of the simple fact that she lies on the sides of her head all day, 24/7. So, with this butterfly pillow there has been a doctors order to give her 1 hour of butterfly pillow time (on her back) each 24 hour period. The nurse practitioner explained to us today that we must insist that Oshawa does the same for her because if she is left to sleep on her sides at all times then she might have long term implications. So in other words, her head might be 'long' up until she's a toddler and it will take her a lot of time to grow out of it if we don't try and fix it now. I have noticed that most of the preemies have this same issue, so it's not anything out of the norm.

So very exciting, tomorrow is her eye exam and they said they will also have to squeeze in a routine ultrasound as well. Anna will also be due for her 2 month immunizations probably later on this week once she is in Oshawa. She is a big girl now for sure!!!

She just has such a lovely demeanor still, just very quiet and taking in the world around her. Loving life, sleeping and a full tummy!!

(We don't have many videos/pictures from today because she slept so sound and she barely even opened her eyes).

Marta & Arthur

Monday, August 30, 2010

T-minus 3 Days??

So I had a little chat with the charge nurse today and rumour had it that the eye doctor would be coming in to the NICU either today or September 1st. We initially weren't sure which day he would come in but it is now definitely Wednesday, September 1st. They don't like to move babies after an eye exam so the earliest she would be transferred is Thursday of this week, pending the bed, and ambulance transfer, yaddi yaddi yadda etc. It's all a big coordinated dance number, and everything has to coincide perfectly for the transition to be smooth.

I also spoke with the charge nurse and let her know that when we go in to see Anna tomorrow we can try to feed her by mouth. We have been having such a struggle with this as some nurses don't feel comfortable and refuse to give us the opportunity to feed her and some advocate for us explaining that we should have already started feeding her by mouth. I just couldn't handle the flip-flop attitudes of everyone so I decided for Anna. If she doesn't take it that's fine, if she does then that's great too, but if we don't try we will never know.

In any case, we will go on with Level III NICU life as it is and as we have for the past 8 weeks. I can't believe 8 weeks have almost gone by and I look back every day at the incredible changes Anna has gone through to get where she is today.

She is now up to 1797 grams which is 3lbs and 15oz and it really shows (what a big girlie!!):



Marta & Arthur

Sunday, August 29, 2010

It's Raining Grandmas!

Anna finally got nice cuddles from both her Grandmas! Grandma from Mom's side came to visit a few days ago and today Anna got a visit from her grandma on Daddy's side. This visit included the usual one course dinner spread over one hour, and a subsequent cuddle. These dinners have made quite the impact on the little girl, she now weighs a whopping 1774 grams which is 3lbs 14oz!! Anna's eye exam is probably going to take place on Monday or Tuesday, which would mean that she could be in Oshawa by Wednesday or Thursday of this coming week.

It is really nice to finally see how family can come in and bond with her, now that she is more and more aware of her surroundings. We can't wait for her to be in the level II facility so that more family can come and see her. One thing is for sure, Anna will have a big family to celebrate birthdays and holidays with!

Anna loves to hang out with her grandmas:



As the NICU downtown is now packing things up and babies are now being admitted in other hospitals like Mt. Sinai and Sick Kids, the room is slowly becoming quite empty. Today the nurse that took care of Anna did not have any other babies in her care (usually they have 3 babies in their care during a shift). There is not much else to report, we are just playing the waiting game now.

Marta & Arthur

Saturday, August 28, 2010

Patience is Virtue

So as the previous post sums it up, today was a bit of a disappointment. I could hardly sleep last night from the excitement of possibly having her so close to home. However, the key word here is "possibly" and as most things go with us, it's usually not in the direction as planned.

It now looks like she probably won't be transferred until at least Thursday since her eye exam is booked in for September 1st which is Wednesday. They do have a bed tentatively saved for her in Oshawa (which they aren't technically supposed to do), but if a baby is born or admitted before that date in Oshawa, of course they will have to give the bed away to that baby. So then Anna would be pushed back yet again. We inquired about possibly transferring her to Ajax but Women's College had some pretty interesting things to say about them and would prefer not to transfer any babies to that particular hospital. Worst case scenario, September 12th nears and she still hasn't been transferred to Oshawa then I'm sure they will transfer her to Centenary Hospital (Scarborough).

In a way it's good because she's having some desaturations still so it gives her time to be in the top hospital for babies for a few extra days, but the selfish side of us wants her in Oshawa as soon as possible.

Anywho, with this step backwards, we wanted to take one step forward and try feeding her a little bit today, a few drops of milk in her mouth but the nurse on duty today didn't feel comfortable with it. So overall a very frustrating day since I've heard several nurses say to me that she is ready to be mouth fed. So I'll try to ask again tomorrow but I am pretty sure that the same nurse will be on tomorrow as well.

The good news is that she is still developing on track, and is up to 24mls of milk every 2 hours and she has gained another 40 grams. She now weighs 1714 grams which is over 3lbs and 12oz. She is so close to the 4 pound mark!! She is incredibly bigger now than she was just a few short weeks ago, and having the si-pap off her face, we can really finally start to enjoy her little quirks and facial expressions:



Here's to hoping that her transfer comes sooner than later!

Marta & Arthur

No Dice

Called the hospital this morning and it turns out that Oshawa wants Anna to have another eye exam prior to being moved. The reason for this is because the ophthalmologist in Oshawa is on vacation when Anna is due for this exam in 1.5 weeks. Of course the ophthalmologist at Women's College does not work on weekends (?!) So Anna will have another eye exam on Monday or Tuesday and will be moved after that.

We are obviously disappointed but we will be patient and wait.

:(

Friday, August 27, 2010

Adieu Mes Amis!

We could not have asked for better timing. On her moms birthday the decision has been made that Anna is ready to be moved to a level II facility. The charge nurse advised us today that they called Oshawa hospital and inquired with respect to availability. It seems that they will have 1 open spot by tomorrow. So it is almost certain that this will happen Saturday August 28th. The time is still to be determined. We spent half a day downtown today, changing the diaper, feeding and holding Anna. She is without CPAP , on 22 CC's of food and gaining enough weight. I have posted a few pictures.




So the plan is that AmbuTrans will come and pick her up tomorrow and they will take her to Lakeridge level II. After 7 weeks of tests, sensors, ultrasounds, brain scans, blood tests and eye exams she finally strong enough to move and she is 1 step closer to coming home.





Anna and her mom had some well deserved quality time together today and now it is time to prepare for the big move. I am sure the next post will include some pictures of the trip. I have to say that the NICU staff at Women's has been absolutely amazing. Anna has profiled herself as a more than excellent patient and some of the nurses actually got attached to her. So we will definitely visit them in their new facility in Sunnybrook hospital.

We realize that this is not the end of the road, but it definitely is a giant leap forward. Anna will be going back to the hospital where she was born. She will be 2 floors above the OR where she was brought to life. It almost seems like it was only a few days ago while in fact it has been over 7 weeks now. When thinking back to that day, we are very thankful for the vast decision of the doctor to operate right away. Thankful for the SickKids Transport Team that made it to Oshawa from Toronto in a miraculously short time frame. And thankful for the 120 nurses and doctors in the NICU for sustaining Anna's life to the point where she is now ready to return to Oshawa. Last but not least, we are thankful for our family and friends that support us through this time. We can't wait to show off our little, diaper filling, smile cracking, (really) soft skinned, little lady. :)

Her is a short video of when Anna was on her moms lap.She was quite observant.