Our Little Ice Cream Cone

Okay so, today I had some one-on-one for the first time with skin contact. The Kangaroo Care I was talking about before. Unfortunately, she had a leak in her air tube and had quite a few spells while I was holding her so we had to put her back. She likes to pull her tube out, apparently she figured out that if she pushes her head backwards then the tube comes out. So it has to be re-taped tonight.

She has gained 3 grams so she's up to 1003g but I guess it's not fast enough. So they're double fortifying her milk so she gains a bit quicker. I think she just has high metabolism ;)

We got a cute little hat for her to wear so she doesn't get too cold, she looked like a little ice cream cone, it was adorable.

So other than that, not much is new, they're probably going to try her on c-papp next week but they're not rushing it. She has already been intubated 4 times so they want to be sure that she can make it without the breathing tube on her own because it's quite harsh on their little tracheas to be intubated over and over again.


Here's a short video of her resting after her Kangaroo care (love the hat!!) -



Marta & Arthur